Malta’s leading ALS activist, Bjorn Formosa, is now on TikTok raising awareness about the realities of living with ALS like never before in a mixture of emotional, funny and very insightful videos.
@bjornformosa15minutes to do what? ##malta ##maltatiktok ##malta🇲🇹 ##foryou♬ original sound – Bjorn Formosa
Whether it is his morning routine of how someone with ALS typically gets out of bed, to the fact of just how much care you need 24/7 for even otherwise simple things like having a cup of coffee.
It not only highlights the struggle of someone suffering from ALS, it also emphasises the importance of facilities like Dar Bjorn existing to cater and properly care for people with such disabilities.
Yet, these snapshots are not all gloom. True to who Bjorn is as a person, there is always a sense of humour.
For example, something that most would not even really consider being a thing is what a road trip experience would be like for someone with ALS.
@bjornformosaMy view on a road trip ##als ##malta ##maltatiktok ##malta🇲🇹 ##storyteller♬ Oh No – Kreepa
Would you have ever thought about this?
It is the small things in life that are perhaps the most insightful and poignant facts about living with ALS: in some cases, it can be funny or amusing.
In others, it definitely can be a reality check for those who aren’t aware of just how brutal ALS can be.
@bjornformosaDance like there’s no tomorrow 😅 these are my last movements ##foryou ##foryoupage ##malta ##als ##maltatiktok♬ original sound – Bjorn Formosa
Bjorn Formosa has long been Malta’s leading ALS activist and has been instrumental in setting up ALS Malta.
He has campaigned tirelessly for awareness surrounding ALS and also, continues to fight to establish Dar Bjorn 2 – another free facility that will provide palliative, 24/7 care to residents that suffer from ALS and other neuro patients.
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