Family Of Four-Year-Old Boy With Muscular Dystrophy Plead For Help As Treatment Comes With Hefty $3.2 Million Price Tag
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In the age of social media, families often share their joys, milestones, and challenges with the online community. One such poignant story is that of Thiago’s journey, as narrated by his family in a heartfelt Facebook status.
As Thiago approaches his fourth birthday, his parents grapple with the heavy reality of their son’s Muscular Dystrophy diagnosis, possibly Duchenne Muscular Dystrophy (DMD), “a genetic disorder that weakens the body’s muscles”.
In the face of adversity, Thiago’s family has taken to social media not only to share their struggles but to call for a collective effort to change the course of their son’s life, since the recently approved treatment with the potential to change the four-year-old’s life comes with a hefty price tag of $3.2 million, besides many other “additional costs”.
“This is sadly the cost of my little boy’s life – a price so steep it feels impossible.”
“Our little boy, Thiago approaches his fourth birthday this April, a milestone that should be filled with dreams of starting school and playing football,” the family wrote, stating that on the contrary, they are “facing a reality very different from these simple joys.”
The family revealed that the four-year-old has been diagnosed with Muscular Dystrophy, and although they still waiting for genetic tests to confirm the type, the likelihood is that Thiago has DMD.
“DMD is a cruel thief of mobility and life, slowly stealing away the strength of children, leaving them wheelchair-bound and drastically shortening their lifespan,” the family wrote, admitting that the “diagnosis has not only changed Thiago’s path,” but has also changed the course of the whole family.
“With this heartache, there’s also a glimmer of hope – a new, recently approved treatment with the potential to change Thiago’s life,” the family continued.
However, this beacon of hope comes with an exorbitant price tag of $3.2 million, “plus additional costs for medications, equipment, and the ongoing care Thiago will need.”
The family went on to say that they created the Facebook page, Thiago’s Journey, not just an outlet for sharing their story but also as a rallying cry for supoport.
“We want to build a movement of support for Thiago, whose life and future hang in the balance of what we can achieve together,” the family continued, urging others to follow and share their story.
“Every share expands the support, every donation, no matter the size, brings us one step closer to a miracle,” Thiago’s family wrote, adding that their cry for help “is about more than just funding,” but about proving that “when faced with the might of a community united for a cause, miracles can happen.”
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